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Saturday, May 24, 2008

Is Aging Itself A "Disease"?

Nowadays, there are a lot of people (perhaps even a majority!) interested in mitigating common age-related health problems. Very few people would answer "Yes!" if asked, "Are you looking forward to experiencing heart problems, increased susceptibility to infections and cancer, and eventual death?" However, most people also accept certain things as inevitable or at least highly probable, and may strongly object to the characterization of the aging process as a "disease" in and of itself.

I'm going to get into what might be considered "nit-picky semantics" here, but considering how many arguments occur over terminology and its implications, I'd much rather err on the nit-picky side than on the side which assumes everyone uses particular terms the same way and attaches the same associations to them. So hopefully you can bear with me as I hash through some definitional complexities and controversies. My intent here is not to "play word games", but rather to attempt to synthesize some of what I've learned as a result of participating in longevity advocacy with some of what I've learned through engaging with disability rights and advocacy.

In one sense, I understand what is meant when referring to aging as a "disease" -- basically, the term aging is sometimes invoked as shorthand for the set of bodily processes that eventually result in greater vulnerability to actual illness (heart disease, cancer, diabetes, etc.) and consequent death.

However, I now recognize as well why the rhetorical device of "aging as disease" bothers some people. To some, calling aging a "disease" implies that there is something "wrong" with old people as they exist today, and that us younger folks all ought to feel sorry for these poor, sick individuals. I know that not everyone has this interpretation, but that interpretation does exist, and I believe it to be a rather problematic one. I guess I've just gotten sensitized to the problems that can stem from purposely framing something as wholly pathological in order to prompt a sense of urgency.

I mean, yes, I'm all for looking for ways to protect people from (and treat) things like heart disease, cancer, Alzheimer's, etc. I don't think anyone is against research in those areas, except perhaps for people who advocate human extinction (or at least a drastic drop in population) for ostensibly environmental reasons. But I don't think trying to re-define all older people as "sick" simply because they are old is going to actually help older people. I've learned through autistic advocacy and disability rights discourse that "pity campaigns" actually tend more to create a worse world for the folks they claim to want to help -- pity is very close to disgust, fear, and resentment on the emotional palette, making the very idea of trying to create more pity seem terribly wrongheaded and potentially damaging.

When I think of people like, say, my paternal grandparents, I do not see how pity would be of any use to them -- and in fact, I'd be personally insulted if anyone tried to pathologize them on mere account of their age. Do I want them to have access to top-of-the-line medical care? Of course! Do I want them to live the longest, healthiest lives possible? Absolutely, and I'm sure they'd agree! But neither of these things necessitates the re-framing of their entire demographic as "diseased".

Now, you might say, "But Anne! What about all that militant anti-aging stuff you used to write? What about your comparisons of aging to other diseases that kill people? Have you morphed into an apologist for ill health and (gasp) death? Have you given up on fighting the good fight, or what?"

And the answer to that is, in a word, no. My underlying opinions haven't really changed at all over the past two years or so.

Two years ago, I thought that longevity medicine was important on the basis that people don't stop being valuable and worthy of life once they become senior citizens -- and I still believe this wholeheartedly.

Two years ago, I thought it was odd that so many people were upset at the deaths of their beloved grandparents, yet perfectly willing to say, "Well, you know, the older generation has a responsibility to stop using up so many resources at a certain point!" -- and I still find positions like that to be rife with cognitive dissonance.

What has changed is my preferred approach to the subject of longevity and longevity medicine. No, I haven't gone all wishy-washy and "politically correct for political correctness's sake" -- I've just seen (over and over and over again) via engagement with disability rights that even when it comes to things that are often (or always) fatal, and which cause people massive amounts of actual pain and suffering, pity campaigns are a distraction at best and downright dangerous at worst.

I realize that not everyone has the kind of experience, reading background, etc., such that they'll "get" what I'm saying here. It's kind of a tough concept, and I am absolutely not saying this whilst looking down my nose at the "plebes" -- I am saying this from the standpoint of someone who quite naively started out thinking it was perfectly fine to speak of "defeating aging" and "battling aging", but who has since reconsidered following observation of where that kind of thinking tends to lead.

And where it tends to lead is a place where a whole slew of people who might have been perfectly happy going about their lives are suddenly put into a public category of People To Feel Sorry For. And the world is definitely a less welcoming, more ominious place when you're walking around knowing that people feel sorry for you on account of the demographic you belong to.

8 comments:

Jamais Cascio said...

Anne, I think one of the complexities of this subject is that the term aging refers both to the process of getting older (implicitly, wiser and more experienced) and to the associated physical decline. That's not surprising; it's only recently that we've been able to conceive of the possibility of disconnecting the two. But as a result, language that pathologizes aging in the physical decline sense runs the risk of seeming to pathologize aging in the getting older sense.

That's why I try to use "senesence" instead of "aging" in my discussions and presentations on the subject. It's a less-familiar word for most people, sure, but it's readily understood, and clearly something worth fighting.

AnneC said...

Jamais Cascio said:

Anne, I think one of the complexities of this subject is that the term aging refers both to the process of getting older (implicitly, wiser and more experienced) and to the associated physical decline.

Yes, exactly. And it gets really confusing when people don't make it clear what they mean when they use words like "aging".

That's not surprising; it's only recently that we've been able to conceive of the possibility of disconnecting the two. But as a result, language that pathologizes aging in the physical decline sense runs the risk of seeming to pathologize aging in the getting older sense.

Again, exactly! That's what concerns me in all this. I know a lot of people using "battle" language (fight, defeat, etc.) with regard to "aging" are generally just talking about fighting the undeniably nasty things (increased cancer susceptibility, heart disease, Alzheimer's, etc.) that tend to occur more frequently the older you get, but still, as I noted in my post, I've become sensitized to certain kinds of language use due to the effect I've seen it have on people. I don't mean to malign the folks who use this language with regard to aging who are actually just talking about remediating age-related health problems, as I'm sure they don't mean to insult or devalue older people, but at the same time, I don't think concerns about the effects of such language should be dismissed as "mere political correctness" or "word games".

You said: That's why I try to use "senesence" instead of "aging" in my discussions and presentations on the subject. It's a less-familiar word for most people, sure, but it's readily understood, and clearly something worth fighting.

Hmm, I rather like that idea -- maybe I'll start doing something similar, because really I think it is important to distinguish the mere fact of "getting older" (which is something that will always happen to people so long as time continues to pass, regardless of what interesting medical interventions come about) from the unpleasant side-effects of age-related bodily changes. Otherwise we're always going to have people arguing over whether or not "aging" ought to be medically addressed, with folks on both sides of the argument actually meaning 2 different things.

Michael Anissimov said...

Effective marketing requires short and snappy phrases, I'm afraid.

AnneC said...

Michael Anissimov said: Effective marketing requires short and snappy phrases, I'm afraid.

Perhaps, but that doesn't mean "marketers" have no responsibility as far as examining the connotations of their phrases goes. Allowing "short and snappy phrases" doesn't imply that ALL "short and snappy phrases" are somehow beyond or above scrutiny. All I'm trying to do is encourage more in the way of examination. There's really no need for argument here, as I'm sure you aren't personally opposed to self-examination of the message one may be putting forth!

Javan said...

On the other hand, aging matches all the criteria of a disease, something which is hard to deny. Although it would be a good idea to briefly explain that the term aging refers to the biological process of senesence, i would still use it. I think most people think of aging as an undesirable process in the first place - and that's a good place to start. Very few people want to die, very few people think about that because most people think it's inevitable. But I guess it depends on your opponent.

AnneC said...

Javan: I think it's always good to explain one's terms. Doing so concisely and clearly can be difficult, but often it's worth the effort. See Jamais's response to my post, because he seems to gave "gotten" exactly what I was trying to say.

Marla said...

All I know is aging is not something I look forward too. Having had many health problems at a young age and surgeries I know it will not be fun to get old and face whatever illnesses will be my demise if nothing else gets me first.

I know that really does not cover your discussion here but that is all I can come up with.

AnneC said...

marla said:

All I know is aging is not something I look forward too. Having had many health problems at a young age and surgeries I know it will not be fun to get old and face whatever illnesses will be my demise if nothing else gets me first.

I'm not looking forward to the health problems that tend to accompany getting older either -- I don't think anyone looks forward to those sorts of things! Hence, I'm very much in favor of research and advocacy to improve and maintain the health and well-being of older people. (I got interested in longevity medicine nearly 10 years ago now because I realized that regardless of all other variables, each and every one of us (if we're lucky!) gets old -- meaning that gerontological/geriatric research is something likely to bring forth tremendous and widely-applicable benefits.)

I am, however, very much looking forward to the perspective one gains with age -- even though I'm only 29, I already find myself wondering in amazement at how much context I now approach new situations with.

I'm finding myself re-watching movies and reading books I saw when I was younger and finding more and more different layers of significance in them; all forms of art seem to be getting richer as I get older because of all the memories and associations that I'm accumulating. It's quite a nifty feature and not one I ever really heard about or expected!

In light of this, I'm very happy to keep the "getting older" part of getting older; I could just do without the "getting sick" part, as I'm sure is the case for most people. But in order to advocate effectively (and in a manner that actually ends up helping people in ways that matter), I think it's important to avoid getting too hysterical about the Mighty Cure.

In my observations, longevity advocacy doesn't suffer from the kind of hysterical fearmongering that plagues autism discourse. What's more, I personally draw a huge distinction between "things that kill you" (like many age-related illnesses) and "things that make you different" (like autism and other forms of neuro-atypicality).

But at the same time, I've read some very compelling material written by people who actually do have painful and/or fatal conditions. And while those individuals are usually (quite understandably) enthusiastic about the idea of finding ways to mitigate their pain and save their lives, they never seem too happy about being pitied or constantly talked about in terms of "suffering". It appears (again, based on what I've read) that even if they are objectively suffering, they still want and need to be treated first and foremost as people, not as "pity objects". It's a quality of life issue and a respect issue, basically.

I don't know how well I succeeded in getting this message across in my post, as it's a rather tricky point to make, but I guess I was sort of trying to suggest that people interested in longevity medicine engage in a bit of self-reflection regarding the messages they're communicating. And it was as much a reminder to myself as to any potential blog readers, because I know how easy it is to get entrenched in a particular way of saying something and responding to apparent challenges to one's perspective on a particular subject.