Longevity, Rights, Ethics, and Happiness in a Complex Universe

Saturday, February 02, 2008

No Singing Allowed: Assumptions and Other Nonsense

This week, an autistic sixth-grader in San Jose was handcuffed and suspended for singing during a physical education class. No, I'm not making this up...you can read the news story yourself.

This is the kind of thing that comes to mind whenever I see people accusing self-advocates of "playing identity politics" (I'm still not entirely sure what that even means, but I know it's often employed in the service of dismissing people's attempts to point out injustices). Regardless of what you want to call the act of pointing this out, the bottom line is that people who appear atypical are vulnerable to having our actions, mannerisms, and responses interpreted improperly. This boy wasn't hurting or threatening anyone, and he wasn't even making more noise than the other students in the PE class -- he was just doing something different from what those around him were doing.

I have no idea what the current generation of advocates is going to be able to accomplish with regard to making the world a more welcoming place for all people (regardless of whatever their individual distinguishing characteristics might be). I don't know what "strategies" are best, and I realize that no strategy is guaranteed. But this kind of incident tells be beyond any shadow of a doubt that more work needs to be done with regard to helping reveal the pervasive and damaging nature of assumptions.

Making unwarranted and fearful assumptions about people based on their mannerisms and responses (and no, I'm not talking about the case in which someone is running at you with a knife...keep your strawmen in the barn, thanks) is just as wrong as making assumptions based on skin color or gender. And while yes, it would be lovely to live in a world where nobody really used these things as a basis for discriminating against people, we don't live in that world yet.

I was misread, misinterpreted, and assumed to be thinking and feeling all kinds of things I wasn't while growing up. I wasn't handcuffed, thankfully, but I was sent out in the hall numerous times, yelled at, and punished for things I didn't even know I was doing. I was punished for intentions I supposedly had based on people misreading my "tone" and "body language" and making assumptions about how someone my age "should know how to act".

Being diagnosed on the autistic spectrum didn't cause any of that, and it was all happening well before I knew my brain was configured the way it is. It was happening long before I had any clue about politics. And I see it continuing to happen to other people whose experiences I can identify readily with -- people who, more than likely, see themselves as a whole, dynamic, and complex being lacking in any desire to "reduce themselves to a single trait" (and I don't think being autistic is a "single trait" to begin with -- it's not a plug-and-play feature, but that's beside the point for now).

I think some people don't like reading or engaging with this kind of thing because to them it seems like an overfocus on differences (likely to prompt concomitant problems like separatism and a "permanent victim" mentality), along with a functional denial of the shared goals and objectives all people committed to progress, freedom, and the securing of more rights and opportunities for all face. And I get that. I really do. I get regularly annoyed when I read things that suggest a "hierarchy of authenticity" -- e.g., people trying to claim that they're more-feminist-than-thou, or more-autistic-than-thou, or more-Californian-than-thou or whatever, and that a person needs to fit some narrowly-defined absolute category in order to get behind relevant goals.

I'm not interested in that kind of thing at all. It's not only unproductive, but terribly tiresome.

For me, "identification" in the political sense is very confusing, and I've actually been rather surprised at the degree to which saying you're anything ends up turning into a political statement. It took me rather a while to even get comfortable publicly admitting to being autistic because of this; I initially saw it as kind of a private issue, but then I realized that all I was doing by not getting involved in the larger discussion affecting people like me was tantamount to agreeing with "don't ask, don't tell" policies. I don't by any means see "female", "autistic", "Californian", "blogger", or "engineer" as being the sum-total of who and what I am, but by the same token, all these things are pervasively interwoven with who and what I am.

I don't think it's fair or logical to engage in knee-jerk armchair psychoanalysis of people who point out examples of improper social assumptions, problems with the status quo, discrimination, and misinterpretation and assume that all such people are just trying to "construct an identity around a single trait" or worse, "construct an identity around victimhood". I'm well aware that no great purpose is served by forging one's entire sense of self around the fact of being oppressed -- after all, oppression is a bad thing, and most of us (I hope) would prefer it to go away!

The way I look at any aspect (or set of aspects) of a person is such that the person will still be that person if all their social and political goals are achieved. And of course that can't happen if a person is so invested in the idea of being oppressed that they consciously or subconsciously work to make sure they remain that way.

It also can't happen if a person lets herself get so attached to how different she is from others that she starts seeing this as something to feel superior about.

And it is most definitely unhealthy for a person to decide, simplistically, that since they're X, and all Xs supposedly do A, B, and C (but not D or E), that they have to restrict their own actions and aspirations to that particular set of supposed axioms. This is actually something I see as a prime goal for advocacy -- getting people to stop putting themselves in boxes whenever possible, and to stop fearing that not fitting the axioms exactly means that they don't have the right to a voice in the larger discussions likely to affect them (regardless of what they call themselves).

So, the kid in the story I linked to is autistic. He's also currently a sixth grader, a Californian, and someone who likes to sing. It's ridiculous, wrong, and frightening that he was physically restrained ostensibly "for the safety of the other students" when he'd provoked no violence and not threatened a single person.

I may write about things under the auspices of "autistic advocacy" or "cognitive liberty" or "morphological freedom" or "disability rights", but all of those pretty much run together in my head when I'm not deliberately squeezing them down for the sake of making the relevant language easier to work with.

Fundamentally, what I want people to understand is that their very definitions of what ranges of cognition, perception, and action exist are probably far more limited than they should be, and that there are more valid ways to be and grow in the world than they can easily imagine.

Why can't we have a world where kids can laugh, chatter, or sing in their PE classes?

Why are kids who bully others not usually pathologized for it, whereas kids who get bullied are so often accused of "having provoked it"?

Why is the present world one in which sitting on a bus and rocking is considered more "dysfunctional" than getting drunk in a club and wandering around puking on the sidewalk afterward?

Why is "society" assumed to be comprised only of people who can get by using only currently-available supports (and anyone who thinks they don't use supports is seriously ignorant), and those of us who might have different needs and ability sets (which sometimes means we need less assistance in some areas than others) are somehow "interlopers" or burdens by default?

I don't think a lot of the answer to these questions has to do with individual people consciously setting out to be mean and nasty. I think very few people actually consciously set out to create evil in the world. More likely, the primary answer lies in the fact that a lot of people never have any good reason to question their assumptions, so they just don't -- in other words, it's plain, old, garden-variety ignorance that isn't anyone's "fault" in particular, and certainly not the result of a deliberate and vast conspiracy. Heck, even the power imbalances I complain about at times (and which I do think are real and important to acknowledge) don't only (or even mostly) necessarily come about due to individual "evil-ness", but due to social and institutional structures that perpetuate those imbalances.

Basically, people who aren't as affected by the pervasive background assumptions that permeate the surrounding culture tend to not see the backgound at all. All I'm trying to do, really, when I write stuff like this is point out the existence of the background to people who might not be aware of it. Not because they're bad people, but because the background isn't something they're constantly banging up against and having to deal with in very real, very tangible ways every day. I don't know if anything I'm doing actually helps in that regard, but that's sort of what I'm attempting. Hopefully at least some of that comes through.

5 Comments:

Blogger Kakalina said...

I thought that this post was a really amazing piece of writing.

I was never really misread or misunderstood by others--usually, it was a issue of me misunderstanding them ^^ because I couldn't see their face. So someone might've said "Sara had a great run in the B-ball game yesterday" and I'd think they said "Salami ana grape run in the Bee Ball yesterday." Yeah.

That being said, I always feel degraded and categorized as "deaf" as though that was the only thing that mattered about me in class when I couldn't hear the teacher and she'd have to yell at the rest of the class to be quiet. I always feel as if they are coddling me, which is an unpleasant feeling. So I've had sort of the opposite experience of you, though it's hard to ask someone to please stop helping you if you need the help. It's sort of a helpless feeling because I have no choice but to accept the help, but I feel somehow less than others because of it.

On the other hand, people will ask me questions about it, out of being curious about what it's like to be Deaf, which is probably the most irritating question we get. "Oh, I don't know, how about you stuff ear plugs into your ears and walk around like that for a week?"

Being diagnosed on the autistic spectrum didn't cause any of that, and it was all happening well before I knew my brain was configured the way it is.

This must be a very difficult thing to experience. If people have no idea who you are, they assume that you are perfect until you prove otherwise. Or at least, that's how I read it. Another trouble is that people get cause and effect mixed up all the time. They think that sorrow and anger are caused by war, but sorrow and anger are actually the causes of war. What's more, if you or I am not diagnosed with something, the general consensus is that we are just like everyone else. If people took to the world with the assumption they don't know anything about anything or someone, I think that would solve a lot of headache and heartache. But people will insist on thinking that their view is the best and only view (I am including you and I in this statement).

For me, "identification" in the political sense is very confusing, and I've actually been rather surprised at the degree to which saying you're anything ends up turning into a political statement.

I identify myself as neither deaf nor disabled. Identity is such a politicized things these days that I feel like I'm walking on a mine field just *mentioning* it. Identifying myself as Deaf would imply involvement with Deaf Culture, which in my case is on the limited side. Identifying myself as disabled would imply acceptance of someone else's classification of me, which I refuse to do. I am no more disable than anyone else at my school--in fact I am far more capable than many. Teachers ask me when I hand them the microphone I use at school "Can you hear me?" which is really a ridiculous question because I can hear people standing beside me just fine. I can even understand them pretty well. I just don't understand enough to go through school without a mik, so that's why I use one. I hate that question! As for being Hearing Impaired, disabled implies inability to hear, and to set *that* record straight, I play flute and violin. By ear.

Why is the present world one in which sitting on a bus and rocking is considered more "dysfunctional" than getting drunk in a club and wandering around puking on the sidewalk afterward?

I think people view the drunk person as more normal because they are under the influence of a chemical that causes them to lose control of their behavior, but it is a condition that will go away eventually. The person who is rocking on a bus shows no sign that she/he is on recreational drugs or anything, so the assumption is that she won't "recover". Ableist and shallow-minded perhaps, but this seems to be how people in this country view things. Also, a lot more people have gotten drunk in this country than having been born with a brain with a slightly altered construction.

More likely, the primary answer lies in the fact that a lot of people never have any good reason to question their assumptions, so they just don't -- in other words, it's plain, old, garden-variety ignorance that isn't anyone's "fault" in particular, and certainly not the result of a deliberate and vast conspiracy.

Have you read Hannah Arendt's book "Eichmann in Jerusalem"? In it she has a theory of the "banality of evil" which is essentially the same as what you are suggesting here (I agree with you). If you haven't, you might want to look into it.

2:36 PM

 
Blogger AnneC said...

kakalina said:

That being said, I always feel degraded and categorized as "deaf" as though that was the only thing that mattered about me in class when I couldn't hear the teacher and she'd have to yell at the rest of the class to be quiet. I always feel as if they are coddling me, which is an unpleasant feeling.

So I've had sort of the opposite experience of you, though it's hard to ask someone to please stop helping you if you need the help. It's sort of a helpless feeling because I have no choice but to accept the help, but I feel somehow less than others because of it.


I don't think your experience was "opposite" to mine -- I just focused mainly on one of the types of experiences I've tended to have in this particular post. Another thing I used to get a lot was assumptions being made about me (and restrictions being placed on me) because of my gender -- I remember in cases where certain things and activities were offered to boys and girls, I was just expected to go along with whatever the "girl thing" was even if it didn't suit me.

For example, in gym class in elementary school the teacher used to tell the boys to do "regular" push-ups, while the girls were instructed to do "modified" pushups (which weren't actually push-ups at all, but some weird crouchy thing). And I was perfectly capable of doing regular pushups. The teacher tried to convince me I shouldn't even try because "girls don't have the upper body strength" for regular pushups, and because we might somehow hurt our "developing breasts" or something if we tried. I thought that was completely ridiculous, and it made me really mad that I was being told not to even try something on the basis of something like gender. It was like this weird cognitive dissonance: I was being told, "You can't do this because you're this kind of person", when in fact, I could do that thing.

Also, I remember getting a lot of messages about "girls not being interested in (or good at) science", and science was one of my favorite subjects starting in very early childhood. Because of those messages, I actually wondered for a while if maybe I was "supposed to have been born a boy" -- I didn't have gender dysphoria or wish I had a boy's body or anything, but I was extremely confused by how people kept trying to claim that being a girl contradicted demonstrated skills and interests I knew I had. Eventually, though, my brain did kind of a flip and I realized that the problem was not that I was a "defective girl", but that most people's notion of what girls could do (and be) was way too limited.

And with regard to the autistic/general brain-quirkiness stuff, in addition to having people assume I don't need help and have difficulty in certain areas, I've also had the opposite: people assume I need tons of help in areas where I don't, so they hover and micromanage. That doesn't even depend on whether they know about any "official designations" I might have -- they just see me doing something in a nonstandard way, or they just misread my body language and assume I "look confused", etc.

I was in a training class once for a certain kind of electronics software, and I'm really good at figuring out how to use software, so I was going through all the practice exercises very quickly and smoothly. But the instructor kept coming up and standing behind me and saying, "Do you need help? Do you need help? Do you have any questions? You need to do this, this, and this!" And eventually I just had to tell him to go away.

Of course, not everyone reacts like that to me -- some people are perfectly understanding and willing to look at my skill set as an individual thing rather than making weird assumptions. But it's happened enough in both directions for me to notice and be confused/annoyed by it.

On the other hand, people will ask me questions about it, out of being curious about what it's like to be Deaf, which is probably the most irritating question we get. "Oh, I don't know, how about you stuff ear plugs into your ears and walk around like that for a week?"

Ah yes, the "self-narrating zoo exhibit" problem. I don't see anything wrong with people discussing their own experiences as they choose to, and there are some contexts in which questions can be offered respectfully, but it's definitely true that people who are atypical in some way are held to a higher level of expectation to submit to impromptu interviews all the time. I mean, I can understand people's curiosity, but it's as if some people can't tell the difference between acknowledging something as necessary and reducing the person to a "reference" or set of stereotypes.

That is, I'd guess that it's good when people acknowledge when someone is deaf and let them lip-read or give them closed-captioning or whatever else they need to understand communications, but acknowledgment in the practical sense doesn't have to mean dwelling on something and ignoring the overall complexity of the person as an individual. That's when you run into things like, "Wait...you tell me you don't want me to dwell on your [atypical characteristic], but then you want it acknowledged and accommodated too? Make up your mind!" -- people assume there's a contradiction there when there isn't at all.

If people took to the world with the assumption they don't know anything about anything or someone, I think that would solve a lot of headache and heartache. But people will insist on thinking that their view is the best and only view (I am including you and I in this statement).

Yeah, my default has generally been not to make very many assumptions about people -- I honestly can't fathom the degree to which most people do seem to do this. I mean, everyone uses heuristics to some extent, but some people employ them in the face of very little information, whereas others employ them on a finer level.

An analogy I've used before is that of "aliasing", which is a concept that comes from electronic signal processing.

If you have an analog signal you want to represent digitally, you generally take "samples" of the analog signal every so often, and plot the sample values along a time axis as points.

Then to get an idea of what the signal "looks like", you connect the points and get a wave-shape. The more sample points you have, the more accurate of a waveshape you'll end up with -- and in electronics, there are rules for how many sample points you need in certain situations before you can say that your digital representation is a good one. If you don't take enough sample points you can end up with a distorted or very misleading picture of what the analog signal looks like -- in this case, the digital signal is said to exhibit "aliasing". And it seems to me that people who make too many assumptions too soon upon meeting a person are basically performing "mental aliasing".

This can be a more expedient means of assessing people in certain situations (especially when there might be an emergency -- e.g., if someone IS running at you with a knife, it's probably better to try to get away than stand there and take more data on what his true intentions might be), and if people in a given area are sufficiently "like you", you can get away with taking fewer data points and have your resultant waveforms more accurately match what those people are actually like, but that tends to break down when you encounter someone you have a lot less in common with (perceptually, culturally, etc.).

(I may have more responses at some point but this comment is already getting really long and I need to work on some other stuff tonight).

5:44 PM

 
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9:47 AM

 
Blogger Kakalina said...

Good for you for standing up to the teacher when he tried to get you to do "girl push-ups". I could do them too--I was a ballet dancer in grade/middle school, but I never told the teacher. I was the quiet/obedient type when I was really young, mostly because I couldn't tell what the teacher was saying, and as a result I'd just mimic doing whatever everyone else was doing. It's funny--there are a lot of stories about deaf/hard-of-hearing (never Hearing Impaired! ^__^) children who have adapted so well and have come up with so many different ways of communicating and living in a hearing society that it took *years* for their parents/doctors to realize that their kid was deaf. I remember having a number of strategies, one of them being that if I saw my brother going downstairs at around 5 in the evening, I knew that it was probably dinner time, and would follow him. My parents never realized that, so when I told them that last spring, they thought it was pretty funny. It never occured to me at the time that I was deaf, and even now I don't see what the big deal is. I'm a pro lip-reader and one of the best students in my grade, so it upsets me when people treat me special.
And I know what you mean when you refer to that instructor. If I do poorly on a test, some of my teachers will assume that it's because I didn't hear all of their verbal clarifications of instructions that they provided during the test. Maybe once or twice that's true, but I try to make it clear when it's just because I didn't study enough, because I hate the idea of being given a "leg up" so to speak, because I'm deaf. It makes me feel uncomfortable, especially since they'll treat me like that even though I'm a good student. One teacher walks around and asks me if I have any questions or anything, but she does it with everyone so it doesn't bother me so much.
I loved your phrase "Self-Narrating Zoo Exhibit"!
That "aliasing" was really, really great too.

5:41 AM

 
Blogger AnneC said...

The "self-narrating zoo exhibit" phrase does not originate with me -- I believe that it originates with autistic self-advocate Jim Sinclair.

9:02 AM

 

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