A recent poll on the Institute for Ethics and Emerging Technologies site posed the question:
Is the economic cost to society from disability relevant?
Three multiple-choice options were provided as possible responses to this question:
1. No, it should be ignored because of eugenic implications
2. No, because it can't really be calculated
3. Yes, it is part of any public policy calculus
At the time of this writing, final poll results aren't quite in yet, but I'll be interested to see the results. I'd be even more curious to know how the various people encountering the poll interpreted the question, but I am not sure there's any feasible way to obtain that information. I will say, however, that I personally found the question to be somewhat vague and difficult to interpret definitively. My first response to reading it was, "Relevant to what?"
I definitely don't think people should ever be discriminated against, or denied certain rights, on the basis of their configuration -- which means that if nondisabled people aren't forced or coerced into undergoing (possibly experimental) treatments in an effort to make them "less of a drain on the system", disabled people shouldn't be either. Additionally, I am horrified by the idea that parents would ever, say, be penalized or denied services for a disabled child on the basis that they could have learned of that child's condition (and aborted the fetus) but chose not to.
While I'm all about offering people plenty of opportunities to develop and enhance their talents, modify themselves, or even gain abilities that they weren't necessarily born with the potential for, it is vital that individuals retain maximum control over their own bodies and lives -- not states, not corporations, and not The Economy. And while I realize that some policies and programs I generally tend to support (e.g., those designed to help people quit smoking or overcome drug or alcohol addiction) would, if successful, result in a larger pool of people capable of traditional employment and less likely to need particular medical services in the long run, economic cost alone is neither a necessary nor sufficient reason for implementing such programs.
Many of the things that are often put into the category of "disability" won't necessarily kill you -- at least, they won't kill you so long as you receive medical care appropriate to someone with your configuration. And I think it's dangerous to promote policies that take an "all or nothing" approach to addressing disability and potential associated medical and social issues -- that is, those which mistakenly assert that unless a person is made "normal", terrible economic and social consequences will ensue.
My own ever-evolving philosophy of disability rights is very much rooted in the notion of morphological liberty, and I find it annoying and distracting when people keep trying to turn debates over disability policy into arguments over whether disabilities are "good or bad". That's not what those debates are about. It doesn't matter, in the context of such discussions, whether a given configuration can or cannot be defined as essentially problematic from the societal or individual standpoint -- at the core, disability rights are civil rights, and it is a civil right that a person's existence not be subject to whether or not they happen to be "in demand" at any particular moment in time, economically speaking. So while I can certainly appreciate that some policies might have a positive economic impact, and that I might agree with the premise of some of those policies, I will definitely draw the line at supporting anything which seems to place economic gain above morphological liberty.
4 comments:
My first response was that it's good to see that the anti-eugenics argument has become so widespread that even those who disagree with it (such as the author of the poll, I'd guess) feel obliged to mention it.
I interpreted "relevant" as referring to the public policy calculus mentioned in #3.
The main problem I have with the wording is that it assumes there is such a thing as "the economic cost to society from disability." Although there are some quantifiable economic costs associated with some aspects of disability (such as, for instance, the loss of productivity that results from employment discrimination and inadequate education), it doesn't make sense to describe disability as having an economic cost in the abstract. That's about as meaningless as asking whether the economic cost to society from women is relevant (although, as Michelle Dawson recently pointed out, there are some parts of the world where a cost-benefit analysis is applied to the existence of women).
abfh: I wonder if the second poll option ("No, because it [the economic cost to society from disability] can't really be calculated") might cover your take on the matter. But at any rate, I agree that it doesn't make sense to describe disability as having an economic cost in the abstract, as you put it. There are people in the world, after all, who think the world would be a better place without any humans -- which is just ridiculous. Though I am definitely in favor of conscious and considerate living and avoiding waste and all that, people really need to (a) stop feeling guilty for existing, and (b) stop trying to make other people feel guilty for existing.
I agree with both of you, but with somewhat different reasoning. abfh, you pointed out very well in your blog, that many of the circumstances that make one "productive" are arbitrary and result from chance and things outside any individual's control. If the economics of "disability" start to matter, then "disability" becomes defined solely in economic terms. If that happens, at what time point does the "economic value" of a life have to be positive?
Children are a net cost until they enter the work force. How much time are they to be given to "make up" the costs incurred before they did? Is it "better" for children to earn $0.50 per hour pulling weeds in a field, or learn how to read?
If "disability" is solely determined by economics, then all retired people are disabled because they are not "working". Similarly all people in prison, the unemployed, full time students, and full time parents.
If you are "consuming" more than you are "producing", then you are a net economic loss too. What if your house burns down and you don't have insurance? Did you "consume" the value of your house the way you "consumed" medical costs for cancer treatment or a heart transplant? Is it ok if you have insurance but not if you don't? What about other accidents? Who is resposible for the "cost" of the Iraq war? The cost of the damage of Katrina? Of global warming?
In some sense economics has to matter because everything has to be done by someone, and you can't force people to do things without compensation as in slavery. But any definition of what costs to include and what to exclude is going to be completely arbitrary, and will be done to discriminate against certain groups as has always been practiced.
daedalus said:
If "disability" is solely determined by economics, then all retired people are disabled because they are not "working". Similarly all people in prison, the unemployed, full time students, and full time parents.
Exactly. Under the social model, all people in the situations you describe are indeed disabled.
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