Psychology Today recently published an article entitled, The Girl With a Boy's Brain, about 24-year-old neuroscience graduate student Kiriana Cowansage. No, it's not an article about a transgendered person, but rather a female who is described as having Asperger's Syndrome. I was intrigued to read such an article because while AS females most certainly exist, most writings that mention autism in any form are primarily focused on boys and men.* And this article almost isn't an exception -- look back at the title.
Yes, the subject of the article is female, but why describe her as having a "boy's" brain? Brain variation in general is an equal-opportunity phenomenon, and while certain kinds of variation are certainly more common in a particular gender, the theory that autism represents a kind of "extreme maleness" is controversial and unproven. And despite the observation that autistic females may seem more like nonautistic males than nonautistic females do, on average, consider the possibility that perhaps attempting to "gender" the autistic brain and demeanor according to nonautistic normative observations is simply incorrect.
In fact, it could very well be that many comparisons which attempt to define aspects of autistic neurology as anomalous or pathological are nothing less than misguided. University of Montreal psychiatrist and autism researcher Dr. Laurent Mottron notes, "You don't say a dog is ill or dumb because it cannot climb a tree. You'd only say that if your vocabulary of description is that of a cat."
This is not to say that autistics are not human -- however, it is to say that there is, perhaps, a critical need for those in the practice of trying to delineate personhood to realize what it means to recognize all kinds of potential minds. As Dr. Mottron advises, "People are afraid of this because they don't want to seem to be rejecting autistics as not human, but we have to overcome this fear and say that humanity is composed of heterogeneous people." (emphasis mine)
This is important -- I've long thought it crucial to avoid insisting that recognized minds "look" obviously and typically human (per recognized-at-the-time cultural norms).
If anyone needs proof as to why this is necessary, they need only look at history and observe that all too recently, even "mild" gender-variant behavior (let alone homosexuality) was considered to be evidence of a disorder -- this article excerpt from 1973 describes boys with gender-variant behavior as "deviant" and notes that early effeminate behavior should be examined, considering that "gender identity or behavior problems are implicated for a significant proportion of adult transsexuals, transvestites, and homosexuals".
Notice how it isn't even stated that there's anything wrong with being transsexual, transvestite, or homosexual -- these things are simply and implicitly accepted as things that are obviously pathological. Many articles written today about autism display a similar implicit assumption, and while some people certainly do have issues that should be addressed, it certainly must be noted that the implicit assumption itself is problematic.
In dealing with people as in dealing with politics, addressing problems on an issue-by-issue basis (such as providing a person with speech therapy, or with treatment for anxiety) makes a lot more sense than defining a platform position and adhering to it (as in, defining "autism" as a horrible monolithic entity and claiming it needs to be "wiped out") even when reality seems to demand otherwise.
So, as far as articles concerning autism go, "The Girl With A Boy's Brain" certainly could have been worse. It didn't imply that "obviously", nobody could ever be happy as an autistic person, and it did not mention cure, or end on the familiar, nauseating note along the lines of, "As we learn more and more about the brain, we draw ever closer to, hopefully, finding a cure for this devastating condition".
Nevertheless, I did wince here and there as the article described people with AS as "sufferers" and referred to the subject of the article as "inhabiting the magical world of a child" (as if "logic puzzles and whimsical drawings" are somehow the exclusive province of children!).
And the article's ending, while not the stereotypical trumpeting of hope for a cure, was vaguely misleading in the manner that it conveyed Ms. Cowansage's longing to interact in a "connected" manner such as that of the rats she observes in her lab work. Loneliness or desire for companionship is by no means an exclusively autistic phenomenon -- there's plenty of mainstream advice out there, frequently aimed at young students, that indicates that feeling disconnected is very common in humans.
Again, on the positive side, the article did bring to light some of the common but less frequently mentioned realities that many of us on the spectrum experience -- such as detail-oriented perception and cognition, intense and focused interests, and the fact that we can indeed display and feel a range of emotions despite stereotypes to the contrary.
I am also encouraged that the article quoted Ms. Cowansage (at the age of 9) as asking her mother, "Does everyone see, hear, smell, taste, and feel exactly the same thing when they perceive the same object?" This question is one that rings very true for me, considering that I remember wondering whether "red" looked like "red" (the way I saw it) to everyone at around the same age. Theory of Mind, anyone?
But then, the article also describes Ms. Cowansage's ability set as "paradoxical". I am somewhat ambivalent and perhaps slightly leery about the use of the word "paradoxical" here, since it could just as easily be applied to a nonautistic person's ability set.
Why is is paradoxical for someone to be good in science and drawing but poor at keeping up with square dancing and listening comprehension, when it isn't considered paradoxical for someone to be good at holding a two-way conversation but poor at logic puzzles or communicating effectively over e-mail? Paradox is, apparently, in the eye of the beholder, and the beholder is inarguably (though generally not knowingly) biased.
The media still has a very long way to go, apparently, before autistic people are written about in a maximally balanced manner. However, it is at least encouraging that some people are recognizing that no, not all of us on the spectrum are male, and that yes, we understand that other people have minds, and that no, we are not schizoid or sociopathic, and that yes, we are capable of learning, having feelings, and leading happy and productive lives.
But it would be even more encouraging if brains like mine (and Ms. Cowansage's) could be recognized as our own and not the result of some sort of neurological gender-bend -- particularly when gender itself is a concept that is becoming ever more fluid.
As expedient as it might be to define the "different" according to how they deviate from an observed norm, it must be recognized that taking this approach could result in the reality of a "different" person being minimized and assumed less complex than it actually is.
* Note that this has nothing to do with "identity politics" -- it is just that perpetuating the idea that only people who are biologically male can manifest certain traits and tendencies has the potential to render females manifesting those traits and tendencies to be viewed as "doubly strange" or even invisible, or to be misidentified as having anxiety problems or being deliberately contrary. When a model is too confining to accommodate reality, the model needs adjustment.
13 comments:
This question is one that rings very true for me, considering that I remember wondering whether "red" looked like "red" (the way I saw it) to everyone at around the same age. Theory of Mind, anyone?
This reminds me of something that happened when I was around that age. My father (who's red/green colourblind) commented "I don't know what red looks like, I just guess." It was very cool when that statement clicked, a couple of weeks later.
I thought it was a pretty good article in what it covered, but I too was majourly irked by the suggestion that in order to have Asperger's, one must have the brain, if not the body of a male! I fervently believe that this is just another example of how different situations affect males and females differently. If anything I find it ironic that researchers in the field can pick up on some of the finer points of Autism, yet can completely oversee the idea that if males are on average more likely to show an aptitude for mathematical/scientific/technological thinking and females an aptitude for language and social/emotional thinking, then surely it makes sense that Autistic boys will be more likely to perseverate on maths/science/computers and Autistic girls will be less likely to? I suppose the problem is that observing a child telling you about nuclear fission is more striking than noticing a child enjoy reading lots...
I thought the title was stupid and horrible, too.
What an incredible person she is, and I find her very compelling and beautiful as a human being.
Why must people be sorted into stupid piles like this?
As a male with mildly Aspergers-Syndrome like behaviour, I resent the idea that her mental patterns and behaviours should be assigned a gender. My brain is certainly not "more male", nor is her brain "male".
If anything AS males and females exist in a category that flummoxes the neuro-typicals, and makes them say the darndest things.
Warren
Maybe, perhaps, people with aspergers are sufferers. Maybe, perhaps, neurotypicals are sufferers as well.
Maybe there is something wrong with you, as with most of us.
Aspergers and NT's are exactly the same in that they limit the way they perceive reality, just at different ends of a spectrum.
I used to have aspergers, but i'm much better now :) I learned how to 'broaden my horizons'. I'm not limited to either side of the spectrum now and can go back and forth as i choose. See, that's the true state for humans. All humans are capable of perceiving the world in the same manner that other humans do, you just have to learn how to utilize your apparatus of perception. Most people are put off by what i say, i guess because it means that they are ultimately responsible for how they perceive reality, sure you were born one way, doesn't mean you can't change. Most people are too afraid.
If you want to know more or have questions, email me at spamreceiverattelus.net
Asperger's are healable. I consider myself to be Asperger's to a certain degree. I used folapro/intrinsic B12 and in 3 months I experienced the changed physically and mentally I haven't experienced in the past >30 years. I changed through this detoxification program. In short, it's just the mercury in the brain that bothered me to focus on bigger pictures.
Samuel
a bee fell out of my mind. what's a mind?
i read that article earlier today as found it fascinating. i was also pretty perturbed by the title the author chose. sounded kind of sci-fi...i don't usually read psychology today, do they usually tend to dehumanize cases? i thought they did a little bit with Kiriana. but maybe that's the psychology world in general; i wouldn't know, i'm a fiction writer.
Wow...where have all these random comments been coming from? I'm just curious because a lot of people seem to be commenting that I don't recognize, so I was wondering if this entry got linked somewhere that I didn't know about.
I suppose it doesn't really matter in the grand scheme of things, however, the number and diversity of comments on this entry represent an interesting statistical anomaly, if nothing else.
403: Your anecdote regarding colorblindness reminds me of something I used to do frequently as a child, which was to attempt to imagine a color I had never seen before.
I remember reading about various animals that could see parts of the EM spectrum that humans could not, and that's definitely something I'd like to get as an "upgrade" someday. :)
And on a semi-random note, I've read that platypuses have some sort of electrical-sensing organ that helps them find food...it doesn't sound anything like anything humans have.
I wonder how their brains represent that to them subjectively -- all sensory input eventually becomes an electrochemical signal, and it's always amazed me how animals are able to "sort" those signals according to subjective internal representation (e.g., you get an "input" and know that it is a smell rather than a sound).
Anonymous (unnamed): Cognitive science is still in a relative dark age, IMO, but we are possibly going to be coming out of it.
One of the biggest positive moves, I think, has been one away from such things as psychoanalysis -- trying to postulate a universal set of "symbols" that are internally meaningful in similar ways across a diverse population is about as scientific as astrology as far as I am concerned.
You said:
if males are on average more likely to show an aptitude for mathematical/scientific/technological thinking and females an aptitude for language and social/emotional thinking, then surely it makes sense that Autistic boys will be more likely to perseverate on maths/science/computers and Autistic girls will be less likely to?
I definitely think that the "on average" is important. In my case, I was very much into "boy" stuff: I perseverated on science and Star Wars and such things while growing up.
But in terms of recognizing autistic girls: I do think that there are some social factors related to those you mentioned that act as a hindrance in recognition of such persons.
One of them is probably the fact that social groups of young girls, more so than young boys, tend to occasionally adopt a "mothery" role. The girls I knew who were actually nice to me in school could tend to be a bit like this; they would interact with me almost as if I were a younger sister or something.
There were plenty (of girls) that were relentlessly cruel as well, and some that would start out giving "friendly advice" but then turn mean when I didn't take their advice, but there were also some that were almost a bit on the protective side. A boy who doesn't act like other boys in particular ways seems more likely to stand out, just by virtue of being subject to different social expectations.
And another thing I honestly don't get is the whole idea about science supposedly being a "boy thing" in the first place -- most of the people you come into contact with, on average, don't seem all that scientifically-minded; they would rather discuss football or TV.
There were very few actual "nerds" when I was growing up (people who were into sci-fi, computers, etc.), so while on average boys might be more likely to engage with science and mathematics, I think that the desire to engage with such things in the present cultural climate is not extremely prevalent.
UltraCrepidarian:
You said: If anything AS males and females exist in a category that flummoxes the neuro-typicals, and makes them say the darndest things.
This actually seems to be what the latest cognitive science research suggests...look up the work of Michelle Dawson and others referred to in the article.
Autistic people seem to have a kind of brain that is differently wired "all over the place" -- it isn't just some localized thing that is "abnormal" but a different sort of development leading to an atypical but frequently characteristic pattern of strengths and weaknesses.
I think that trying to "gender" the autistic brain is much more likely to fail than "gendering" the nonautistic brain, simply because the entire social concept of gender is based on majority averages.
Anonymous 2:
I'm confused. First you say, " Aspergers and NT's are exactly the same in that they limit the way they perceive reality, just at different ends of a spectrum.", but then you say, " I used to have aspergers, but i'm much better now :) "
Is it better to be limited in the way you perceive reality in one way, but not in another way? And if you become "less Asperger's", does that mean you are perceiving more of reality or just a different part of it?
One of the reasons I would not take anything called a "cure" is because, time and time again, experience has demonstrated that I see more of reality in a lot of ways than other people do, and I see different parts of reality -- and I think that it would be sad if there were nobody to see those parts that few do, because those parts are so beautiful.
I am sure that other people see things that I do not, but since none of us can possibly see *everything*.
Anyone can broaden their horizons -- AS or NT or anything else. The autistic brain is not inherently incapable of learning, even when it comes to social matters -- it's just that the information gets in differently, and is processed differently, and frequently on an atypical timeline. Is that what you were trying to say?
If so, the only caveat I have there is that people ought to be able to decide how they would like to broaden their horizons...and they also ought to have the freedom to spend time deepening rather than just broadening.
All your comments concerning the title of this article are well taken.
However, I believe that the article title relates AS to a male brain because there is a theory that AS is directly linked to male genetic traits. While gender etc are not contained within a binary scale, sex is.
There are characteristics that accompany sex, i.e. breasts, hair, hip structure. There are males, and there are females, there are also those with dual genitalia. It seems you are making the argument that There is no sex. You might argue that a person, who has a vagina, but is unable to conceive children, and considers their gender to be male, that their sex could indeed be male. There are traits that express themselves in different way. There are normative expressions and there are those that deviate from the norm. I use the word deviate in its truest sense. There is nothing wrong or unsettling about the difference. But the scientific community recognizes these differences.
AS is said by some to be an aberrant expression linked to normative male development. This explains the title as uninformative as it was. Yes both sexes have diseases, the vast majority of which are shared. The fact remains that our biology dictates difference between males and females. It is our cultural misguidedness that assigns judgment in a way what these same scientists would consider to be infractions on civil liberties and a assault on the dignity of these individuals.
Thanks for your perspective on the article. My 9 year old daughter is an Aspie and I'm always looking for positive FEMALE role models for her. As a parent, I'm still learning about ASD's but the connection with rats is really true to life for us as my daughter is fascinated with rodents especially mice.
Scott
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